Friday, November 1, 2013

Augusto Odone obituary - Lorenzo's Oil and adrenoleukodystrophy - Augusto Odone tends his son, Lorenzo, on his 30th birthday, two days before his death in 2008. Photograph: Derek Blair/Rex

The tale of the determined amateur who proves the professionals wrong is always a compelling one, but with Augusto Odone – who has died aged 80 – it went much deeper. In 1984, his youngest child, Lorenzo , just a month away from his sixth birthday, was diagnosed with adrenoleukodystrophy (ALD), a neurological disorder that causes the degeneration of the brain in young boys.

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